The World Health Organization says that the number of diseases that used to be countable is now more than ten thousand. Some of these diseases are very rare in humans, but considering the severity and nature of the disease, it is the need of the hour for us all to know about it. One such disease is Muscular Dystrophy, a type of muscular dystrophy that can start in childhood. Let’s take a closer look at Muscular Dystrophy, which is one of many life-threatening muscular dystrophy diseases.Muscular dystrophy…
*It is a cluster disease. In this, all the muscles become weak little by little. There are no cures for this and the victim may die when the muscles completely fail.What happens in the body?*Muscles are needed for us to walk, write, do other work, why even to breathe.
*So in this type of disease the leg muscles are affected first. This will cause difficulty in walking at first.*In the following years it will also affect the hand muscles. Due to this, the victim will suffer little by little and at some point will become completely bedridden.
The information provided by the data…*One child in three thousand boys is affected.*95 percent boys are affected. Only five percent of the remaining girls have the chance of developing the disease.* Even if girls carry this gene, they will not be affected. But male children born to them may be affected by the disease.
What is the reason…?*The exact cause has not yet been identified.*But there is evidence that it is a hereditary disease.Know the types…1. Duchene Muscular Dystrophy: This type is more common than the others. And one more vigorous than the other.
In which all the muscles in the body are affected. 2. In this Duchene type, symptoms are unknown at a young age. It can be seen above the age of twenty. 3. There are many types such as the type that affects only the shoulder and hip muscles, and only the facial muscles.
Symptoms…* Most of the children affected by this disease do not walk in a year and a half. Late onset of walking.* Walking slowly, frequently falling down while walking,* Difficulty running, running with slight variations in running.* Difficulty climbing stairs.
* Difficulty getting up from a sitting position, standing up with hands on knees.* Symptoms usually appear between four and six years of age. . Only then do parents have doubts about these activities.* Brain development is reduced in some children.
* Muscles are weak. It appears from top to bottom. This means that the shoulder muscles are affected first. Posterior elbow muscles. Finally, the muscles of the fingers weaken. The same goes for the feet. The hip muscles are affected first and the foot muscles last.
Stages of the disease… 1.Until walking :Muscles in the legs become stiff as walking slows down a bit. As a result, the joints begin to collapse. This damage is called deformity in medicine. A pediatrician may recommend surgeries if the muscles are too tight. Between the ages of seven and fourteen, walking stops completely.2.Wheelchair up to:; Constipation may occur frequently due to lack of movement.
Sitting all day can lead to weight gain. By the end of this phase, an automatic wheelchair is required. Because the arm muscles are completely weakened. Until then the victim has to use a manual wheelchair.
3. Bed Position :Changing clothes, brushing teeth, showering, going to the toilet, and turning in bed all require someone’s help. Death can happen anytime. Pulmonary infections account for 90 percent of this; becomes Bones are easily affected by Osteopenia.
There will be an uncontrollable situation of sewage. So they often go like drops of water (Urinary Incontinence). Lying on one side of the bed for long periods of time can cause bedsores. From the day the disease is diagnosed, stress, depression etc. may occur to parents and children. However, as the situation worsens over the years, it can become more stressful.
How to detect…?Parents should first consult a general practitioner or paediatrician, if they notice any changes in their child’s body movements. (For example, the child has difficulty walking, difficulty sitting up).* Parents will decide based on the telltale signs and blood levels of the chemical CPK.
* If necessary they will suggest to detect muscle activity and take out the muscle tissue for examination.* If the mother or father has this disease before, they will see if the fetus is a boy. In that case, doctors will advise you to have an abortion.Solutions…There are no solutions for this disease. So only temporary treatments are given for the symptoms of the disease.
The Role of Traditional Medicine…*They will prescribe and teach exercises to strengthen muscles and keep tight muscles relaxed.*Exercises should be done regularly. Parents should keep in mind that if one day of traditional medicine is not done, one day is lost in the victim’s life, and if one day of traditional medicine is added to one’s life, *Exercises for daily life will be structured and taught.
Helpers of the victim will be taught that they can avoid sores and maintain muscles.* With equipment such as splints, arthrosis etc., muscles can be maintained for a few more years.* To prevent mucus from accumulating in the lungs; breathing exercises,At home…*The bed and bathroom of the victim at home should be adjusted according to his convenience. For example, placing a switch board to switch off the light while seated in a wheelchair, setting the bed at a wheelchair-friendly height.
In the school…*Parents should teach the helper in the school how to lift the victim and sit down. In general, it is very important that we know about genetic diseases and changes in the development of children. And don’t worry if we have children with muscular dystrophy in our home. It should be kept in mind that there are many victims like them who have studied and got a degree and have good jobs.